Creating a community and platform for all patients and caregivers affected by PH
To view our latest activities, please visit our Facebook page
Click to receive information about future events
-
Patient Gathering May 6th 2023
After months of planning, we finally had our patient gathering of the year! In commemoration of World PH Day (May 5th), we had a great time listening to doctors and nurses updating us on the management of the disease, and listening to fellow patients’ inspiring stories. It was touching to bond over shared experiences, knowing…
-
Carry Hope Walk 2023
Our first big event of 2022! We participated in the Carry Hope walk organised by Rare Disorders Society Singapore. Thank you to all patients, family, friends, and volunteers for sacrificing a Sunday morning sleep-in to give support to such a meaningful cause. We hope you had as much fun as we did!
-
Global PAH Patient Charter: 2022 update
Since the updated guidelines on management and treatment of PH, the global PAH Patient Charter has also received an update. But what is the Patient Charter? “The PAH Patient Charter outlines the standards of holistic care that we believe everyone with PAH should receive…If you think that you are not receiving the kind of care…
-
Social Gathering 2022
Finally, our first in-person gathering since covid-19 happened! We know it is difficult to accept and come to terms with the diagnosis of a terminal illness, especially when you yourself are a caregiver to others. We hope that more patients diagnosed with PH will be able to come together to share this difficult journey and…
-
Online Gathering 2020
Covid-19 has us all kept to our homes and necessary places only, so we decided to do an online one! Some updates from Aidila on a handbook that was designed for PH patients, and from Melissa who talked about the benefits of exercise in PH. Thank you to those who attended the little gathering and…
-
A Patient’s Journey – Veronica
Today on World PH Day, we have the blessing of sharing another patient video – this time with Veronica and her caregiver husband’s journey with PH.
-
Social Gathering 2019
Our patient support group gathering of the year. Nice to see new faces and make new friends!
-
PH Awareness Campaign 2018
Big thank you to those who turned up for our event! We hope you enjoyed the entertainment, food & drink and company. Extra big thanks to local musicians Jack & Rai for lending their support and energy, Dr Low Ting Ting for her expertise knowledge, and above all – to the patient advocates and caregivers…
-
A Patient’s Journey – Haslina
Here’s our lovely Haslina aka PHighter with her story about living with PAH:
-
Jason’s Gobi March 2018
Jason has done it! He has spent 7 grueling days crossing the Gobi Desert, surviving only on what he can carry on his back and the water provided. It is amazing what he has accomplished and we cannot thank him enough for what he has done for our cause. Thank you too if you have donated to…
We’d like to hear from you