This policy outlines how we will collect, use, disclose and protect your personal data. In compliance with the Personal Data Protection Act (PDPA), we will not share your personal details with a third party without your consent, and all your personal data will be kept confidential.
Types of information collected by us
The types of personal information we may collect include:
Personal particulars and contact details (name, address, telephone numbers, email, etc);
correspondence details (in letters or emails);
donation history, credit card and/or bank account details (for donors);
Pictures and videos.
The types of sensitive information we collect include records of communication between us, which may include information you provide us or as collected from others. This includes, but is not limited to, the following types of information:
NRIC / FIN number;
personal financial information;
personal credit card data;
any idiosyncratic or personal information we obtain from you or others about you; and
photographs/videos taken at events or posted on our social media such as Facebook.
Why we collect private information about you
Pulmonary Hypertension Singapore (PHSG) is a non-profit organisation dedicated to assisting and improving the lives of pulmonary hypertension (PH) patients and families through promoting awareness, advocacy, education and providing support. We collect information about people so as to allow us to communicate with them, raise awareness of our organisation and our work, encourage donations and to collaborate with them so we can continue our mission to build a strong PHSG community and platform for all patients and families affected by PH.
We will require your information to better serve our support group members, patients, as well as donors, and we do not use the information in any way other than the purpose it is collected for.
This includes, but is not limited to:
the immediate reason for which you have provided it to us (for example, to enable us to process your request, payment, registration, subscription, etc);
to maintain contact with you about our work, to report to you about our work, or to encourage you to learn about what we do; and
any other purpose directly related to our work and for which you have provided consent (where it is reasonably required by law).
In order for us to find new supporters, like-minded organisations may allow us to contact their mailing list. However, please be assured that we do not rent or sell your information to them in return. We take reasonable steps to ensure that these organisations are bound by confidentiality and privacy obligations when handling your personal information.
At times, we may be legally required to disclose your information, for example, to government departments like IRAS for submission of tax deductions.
We may also share non-personal, non-sensitive and de-identified information for research purposes.
How we collect your information
We may collect information from you either directly or from third parties. Information we collect from third parties may be by formal or incidental means, via the following:
face to face contact;
electronically including through our website and online surveys;
via social media messages or conversation;
during phone calls;
voice or image recordings;
whilst delivering and administering services at our facilities and/or events;
from forms, coupons and other correspondence (both in writing and electronically); and
How we use your information
We only use your personal and sensitive information for the reason we collect it as set out above and for the purpose(s) for which it was collected, or as otherwise permitted by law.
We will not disclose the above information that we collect to affiliates or third parties without your consent.
In order to foster a strong support network and promote interest from other parties or organisations, photos or videos taken of you at our events may be posted to our website and social media channels, which will be made available publicly.
Accessing your personal information
You can access your information by contacting us. Occasionally, we may need to refuse your request to access information, if it (but is not restricted to):
threatens the safety of physical or mental health of another individual
Causes immediate or grave harm to the safety or physical or mental health of the individual who made the request;
Reveals personal data about another individual;
Reveals the identity of an individual who provided personal data about another individual; and
Is contrary to national interest.
When you request access, we will ask you to provide some form of identification so that we can ensure that you are the person to whom the information relates.
We aim to respond to you within 7 working days of receiving your request.
If we are not able to assist with your request, you will receive a written explanation on why this has occurred.
Disclosing your personal information
Occasionally we may use an external vendor to process, data-entry, letter-shopping or back-up information or for the provision of other services.
As a result, we may disclose your personal information to them for these purposes.
We do not otherwise disclose or transfer your personal information to an external party.
Securing your information
We take reasonable steps to ensure the security of personal and sensitive information we hold and to protect it against loss, misuse or unauthorised access, destruction, use, modification or disclosure.
Our IT systems are protected and comply with applicable security standards.
Only authorised personnel are permitted to access these details.
It is our policy to destroy personal information once there is no longer a legal or business need for us to retain it.
It is your right to be dealt with anonymously, provided that is it lawful and practicable.
We will try to accommodate a request for anonymity wherever possible, however we note that in some circumstances, this may prevent us from practically and effectively communicating with you. If this is the case, we will notify you of such circumstances.
Cookies and links to other websites
When you visit our website a record of your visit is logged. The following data is supplied by your browser:
Your IP address and/or domain name;
Your operating system (type of browser and platform);
The date, time and length of your visit to the website; and
The resources you accessed and the documents you downloaded.
This information is used to compile statistical information about the use of our website. It is not used for any other purpose. If you do not want ‘cookies’ to be used, please disable them via your browser settings.
Links to other websites
Our website may contain links to third party websites, and similarly, third party websites may also have links to our website.
The operators of other websites may collect your personal information.
We encourage you to read the privacy policies of any website you link to from our website
Opt-Out and Correction of Information
From time to time, PHSG or its authorised agents may call, SMS, email or mail you information about our events, programmes and services. However, should you prefer us not to, kindly inform us by emailing firstname.lastname@example.org or calling +65 91599937.
Alternatively, if you have changed any of your contact details, please inform us so that we can keep your information updated.
Feedback about a breach of your privacy
If you are concerned about how we have collected or managed your personal information, we request you follow the procedure set out below.