Patient Gathering May 6th 2023

After months of planning, we finally had our patient gathering of the year! In commemoration of World PH Day (May 5th), we had a great time listening to doctors and nurses updating us on the management of the disease, and listening to fellow patients’ inspiring stories. It was touching to bond over shared experiences, knowing that we are not alone in this journey.

Another highlight of the gathering was a shower steamer-making workshop led by our patient activist Agnes. If you don’t know what it is, it’s like a bathbomb for showers – good for aromatherapy and relieving stress. Slightly messy but great fun! Hope we didn’t make too much of a mess behind at the venue =X

No event is complete without food, and we ended off the session with good makan. Hope that everyone enjoyed themselves and we look forward to seeing everyone at the next one!


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