Category: Uncategorized
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Patient Gathering May 6th 2023
After months of planning, we finally had our patient gathering of the year! In commemoration of World PH Day (May 5th), we had a great time listening to doctors and nurses updating us on the management of the disease, and listening to fellow patients’ inspiring stories. It was touching to bond over shared experiences, knowing…
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Global PAH Patient Charter: 2022 update
Since the updated guidelines on management and treatment of PH, the global PAH Patient Charter has also received an update. But what is the Patient Charter? “The PAH Patient Charter outlines the standards of holistic care that we believe everyone with PAH should receive…If you think that you are not receiving the kind of care…
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Social Gathering 2019
Our patient support group gathering of the year. Nice to see new faces and make new friends!
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PH Awareness Campaign 2018
Big thank you to those who turned up for our event! We hope you enjoyed the entertainment, food & drink and company. Extra big thanks to local musicians Jack & Rai for lending their support and energy, Dr Low Ting Ting for her expertise knowledge, and above all – to the patient advocates and caregivers…
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New Year Gathering 2018
Our annual gathering for 2018
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Photos from our past events