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Patient Gathering May 6th 2023
After months of planning, we finally had our patient gathering of the year! In commemoration of World PH Day (May 5th), we had a great time listening to doctors and nurses updating us on the management of the disease, and listening to fellow patients’ inspiring stories. It was touching to bond over shared experiences, knowing […]
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Carry Hope Walk 2023
Our first big event of 2022! We participated in the Carry Hope walk organised by Rare Disorders Society Singapore. Thank you to all patients, family, friends, and volunteers for sacrificing a Sunday morning sleep-in to give support to such a meaningful cause. We hope you had as much fun as we did!
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Global PAH Patient Charter: 2022 update
Since the updated guidelines on management and treatment of PH, the global PAH Patient Charter has also received an update. But what is the Patient Charter? “The PAH Patient Charter outlines the standards of holistic care that we believe everyone with PAH should receive…If you think that you are not receiving the kind of care […]
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Treating PH
How is PH managed? For those diagnosed with PAH (Group 1), your doctor may use this simplified table to track your progress1: This helps them to plan which tests need to be repeated at different times: As mentioned, PH is complex and requires different approaches to manage the condition well. Each type of PH also […]
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Diagnosing PH
How will the doctor know that I have PH? What tests will they perform? The management of PH may be different between doctors, but the following are some recommendations by international guidelines1: Right heart catheterization (RHC) This is the gold standard for diagnosing and classifying PH. It involves inserting a catheter into the right heart to […]
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Useful Links and Materials
Learn more about PH Materials for the PH Journey Our Organisational Associates Specially for Caregivers
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Medical Assistance
National University Heart Centre, Singapore Contact details and opening hours Floor 1, National University Hospital, 5 Lower Kent Ridge Road, Singapore 119074 For International Patients and Overseas Referrals The Patients Liaison Centre (PLC) is a one-stop service centre to support the needs of our foreign patients and visitors. 24-Hour Helpline: (65) 6779 2777 Email: plc@nuhs.edu.sg National […]
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Social Gathering 2022
Finally, our first in-person gathering since covid-19 happened! We know it is difficult to accept and come to terms with the diagnosis of a terminal illness, especially when you yourself are a caregiver to others. We hope that more patients diagnosed with PH will be able to come together to share this difficult journey and […]
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Online Gathering 2020
Covid-19 has us all kept to our homes and necessary places only, so we decided to do an online one! Some updates from Aidila on a handbook that was designed for PH patients, and from Melissa who talked about the benefits of exercise in PH. Thank you to those who attended the little gathering and […]
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A Patient’s Journey – Veronica
Today on World PH Day, we have the blessing of sharing another patient video – this time with Veronica and her caregiver husband’s journey with PH.